:: Day 3 & 4: The "It's Anything But Lymphoma" Era ::

Submitted by TLHines on Mon, 06/11/2007 - 16:03.

After my Friday appointment with the hematologist/oncologist, I have a whole weekend alone with my computer. And now that I've eaten one apple from the forbidden tree, I seem to have developed a taste for the fruit.

So I spend approximately 40 of the 48 hours researching. And now, I'm researching not-Lymphoma. In other words, I'm looking for diagnoses that might explain my swollen lymph nodes--diagnoses which aren't Lymphoma.

And it's a good list with exotic-sounding names. Sarcoidosis. Toxoplasmosis. Yersinia Pestis. Various autoimmune disorders. Even run-of-the-mill diseases such as measles or rubella. "I may not have lymphoma," I tell myself. "Why, it could be Kikuchi Disease." It does not matter to me that Kikuchi Disease almost always happens on the Asian continent, one place of many I've never been. It's a possibility, and that's enough for me.

Having not-Lymphoma, you see, is suddenly very important. Especially having not-Non-Hodgkins Lymphoma.

Still, I'm willing to consider Lymphomas, if it comes to that. I'll go with Hodgkins first, because it's curable in a lot of cases. In Non-Hodgkins, some of the large B-cell Lymphomas have good rates of cure.

But especially, I do not want to have something called Follicular Lymphoma, which is considered incurable. Anything but that.

Well, if this were a novel, and I were the main character, you know exactly what would happen to the main character.

And as I'll find out very soon, life can be a lot like a novel sometimes.

Your Blog

Hiya.

Just a note of thanks for taking the time to do this. Am contemplating a similar blog so my friends and family can follow my progress.

I have B-Cell Non-Hodgkins, but thats all we know so far from a biopsy.

I found my "tumour" while in the shower. Its big. It's in my Leg, and it seems to have appeared overnight...although it likely festered for awhile.

I've had a couple of X-Rays and two CT Scans and they tell me everything looks contained to the nodes so far.

Reading about your ordeal gives me great hope.

My Surgery is next week (Feb 23rd).. and after that I have no idea how the treatment will begin or how long I have to wait...(I'm in Calgary, AB...and our health care system is somewhat "broken" here...mostly because there just arent enough doctors for the population.)

But I chuckled aloud and the similar reactions...right down to "googling"
"NHL survial rates"

Again, your story gives me hope! Thanks

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