So the big news is: I had my most recent PET/CT scan this week, and everything came back clear. No uptake, no lymphadenopathy (doc-speak for "swollen lymph nodes"), no nothing.
Well, that's not quite right. When I went to see my oncologist, he said "You've been running a lot, haven't you?" I told him I had, and reminded him I planned to do a half-marathon this September. He then asked if my right hip was sore. I told him it was, as a matter of fact: I'd run on a miserable banked concrete track just after Christmas, and my right hip had paid the piper for that transgression--two weeks later, it was still hurting.
He showed me the PET scan, pointed to the inflammation showing up on the PET and told me I'd aggravated my ilotibial band, which runs from the hip to the knee. "Common complication from running," he said. "Use some ice and ibuprofen."
So, it's nice to find something on a scan that can be treated with ice and ibuprofen, as opposed to, say, chemotherapy and radiation.
In an odd way, I find it comforting that the hip is lighting up on the PET scan; after all, if that mild inflammation is showing up, that means any serious activity on internal nodes would show up too, wouldn't it? If a sore hip tendon is the worst my scans have detected, well, that in itself makes the hip feel much better.
Whilst on the subject of the sore hip: I have to say it crimped my running for a few weeks. But this past week, I was able to get back to where I was before the injury. Four miles running uninterrupted, five miles total. I stand out like the proverbial sore thumb on the track at the YMCA: the 6-foot, 270 pound guy doing laps with several tracksters who are 6' 3" and about 150 pounds soaking wet. But in an odd way, I enjoy it; it's nice to be the guy who inspires others to spontaneously start singing "One of these things is not like the other..." from Sesame Street.
Yeah, five miles is a long way from 13 miles, but I still have eight months. I figure a couple more months of track running inside, working my way up to a six or seven mile base; after that, I'll switch to outside running, and start working in some intervals and such, doing some serious training. By September, I should be ready to go, I hope.
I might have to walk, crawl or otherwise drag my carcass across the finish line, but I'll finish.
No matter how much that hip hurts.








BEXXAR
Tony,
Congratulations on the scan results. I have NHL and about 20-30% Bone marrow involvement and am being told to have the Bexxar therapy. They can't tell if it is closer to 20 or closer to 30 % since the biopsy samples are not very uniformly spread in the sample. I want to take the Bexxar while I am relatively healthy. Do you recommend it based on your experience with it. I have had many chemo's and those types of treatments don't bother me much.
Hi, John - I'm obviously a
Hi, John -
I'm obviously a pretty big Bexxar fan, as it's done wonders for me so far. As you probably know, Bexxar's recommended if bone marrow involvement is 25% or less, and you're obviously on that borderline. This may mean the Bexxar will be especially heavy on your bone marrow reserves as the treatment clears the lymphoma cells. For that reason, I'd strongly encourage you to ask about stem cell collection before you have the treatment, to possibly leave open the option of a transplant down the road if needed. Karl, who founded Patients Against Lymphoma (www.lymphomation.org), and whose wife had Bexxar following several chemo regimens, would also be a good resource. Contact him at http://www.lymphomation.org/guestbook.htm#ask.
That is such good news Tony!
That is such good news Tony! Glad to hear that you are doing so well ... as a matter of fact, you are doing great!
My hips would hurt if I ran all that distance! Come to think of it, I don't run but yet my hips do hurt. Should I be worried?????!
no lympho and your latest book
Tony ! So excited that there's no more Lymphoma. PTL. Was great to meet you at Costco, and I just finished The Unseen, what an amazing read. May have to do it for book club.
Congrats!!
I just found your page through facebook. I'm 24 and was diagnosed with stage 4 FNHL one year ago last month. I have my first scan after treatment next month and am quite nervous! So it's good to hear that yours went well.
It's also inspiring to hear that you are running. I have felt so weak since I finished treatment and I want energy again. If you can get out there and run so can I!!!
I wish you all the best!!
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