Submitted by TLHines on Thu, 11/01/2007 - 23:12.
Today marks six months since I first heard the dreaded "L" word for the first time. (For you hopeless romantics, "Love" isn't the "L" word in this case. It's "Lymphoma.")
For such a momentous event, it feels pretty noneventful.
I've gone through some definite peaks and valleys in that six months. Okay, mostly valleys. Deep, deep valleys.
But you know what? I'm okay. I've come to terms with this whole lymphoma thing, and I've learned some positive things from it. I've researched and completed the treatment I felt was best for me. And so, I've done what I can to battle it. Now, I just have to trust that I've done the right things. So I'm in a good place. My happy place.
I have a blood test tomorrow, then another oncologist appointment on November 15th. That will be a month since completion of my Bexxar therapy, and the time when my white blood cell counts are starting to bottom out.
But since I haven't done anything medically-related for several days, I think it's good to reflect back on this whole experience, and to give a bit of thought to what I've learned along the way. And one of those things I've learned is, we all have certain preconceptions about cancer. (That includes me, of course...or it did, until I found out I had cancer.)
And so, I think I'd like to take on a few of those preconceptions in the coming weeks, and tell you why cancer isn't always what we think it is.
And the first preconception can be summed up nicely in the one question I've been asked more in the past six months than any other:
How are you feeling?
Seriously, anyone who knows I've been diagnosed with cancer asks me this whenever they see me. Sometimes, I get asked more than once in a single conversation. Obviously, we feel anyone who has been diagnosed with cancer must be feeling sick.
Well, I've never felt sick. At all. My cancer was discovered by a fluke, and I've never had any symptoms.
I think this might be a bit scary for some to ponder. I think we want to feel that we'll know when we have cancer, because cancer is bad, and so we'll feel sick when we get it...and thus, we'll be able to catch it early and get it treated.
Unfortunately, it doesn't always work that way. I'm proof of that.
Don't get me wrong; I know people are being concerned and all when they ask how I'm feeling. It's the cancer equivalent of "What do you think of the weather?" It's an innocent, safe, conversation-starter. I really do understand all of that. But when you get asked how you're feeling for the 800th time, well, you start to get a complex about it. I'm not saying this because I feel I never want another person to ask; it's no big deal, and I do appreciate the kind thoughts of all. I'm merely making an observation that we seem to thinik "having cancer" = "feeling sick." That's all.
However, the evil part of me is starting to think I should come up with horribly inappropriate answers, just for fun. A few options:
1) "Fine right now. But the doctors told me I'd feel better right before I die."
2) "I'd be better if I could find a liver donor...what's your blood type, by the way?"
3) "Just taking it a day at a time, because I'm told a sudden aneuryism could take me at any---GAAAAAAHHHHH!"
4) "I'm sorry. Do I know you?"
Let's all hope the evil part of me doesn't win.
How R U not feeling?
Well, some of us are waiting to hear you say "I'm feeling like a Reeses' Peanut Butter Cup."
BTW Tony, I'm half way through your second book, "The Dead Whispers On." You are a very sick man, indeed!! Ohhhh.... but I'm loving it ... but where in the heck are you taking me????
Haven't brought myself to
Haven't brought myself to eat a Reese's Peanut Butter Cup yet. But I've had peanut butter sandwiches, and on Halloween, the Almond Joys tasted pretty darned good.
As for the book: I AM a very sick man. Don't tell my mother.
How are you feeling?
Yeah, I get that question a lot, too, from people who take on an earnest tone in their voice and look deeply into my eyes.
I say I feel fine. What more can I say? Like you, I've never had a symptom. The R-CHOP chemotherapy made me feel sicker than the cancer ever did.
Yet, at the same time, a day doesn't go by when I'm not aware that I have lymphoma. That doesn't make me feel especially good... yet, how could I ever explain that to my questioner?
Ah, the dilemmas of living with this slippery disease.
Hang in there.
Liver Donor
I downloaded Waking Lazarus off Audible and LOVED it - came across your blog just trying to learn about you. I've been following your story, and a couple of weeks ago my father was diagnosed with severe cirrhosis. They think he got it many years ago during emergency surgery on the mission field.
After reading this entry I was ready when the head of the diaconate asked me at church if there was anything at all he could do. I replied "Well he does need a new liver".
Just wanted to warn you in case you haven't actually verbalized your thoughts to well wishers - it was kind of awkward. There's this pause where they're thinking "Surely he didn't think I meant ANYTHING" - I've used the line twice - and don't think I will anymore.
BTW - my Dad's 84, had an awesome life, and is looking forward to his homegoing. May God bless you as you use your creative gifts so well
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