Days 154-160: Easy, but Queasy

Submitted by TLHines on Fri, 10/12/2007 - 18:08.

Fears of radiation poisoning turn out to be entirely unfounded.

Aside from the third arm now growing out of my back.

Actually, the time spent in semi-seclusion isn't that bad at all. It's not quite what I expected, I must say. Based on my reaction to the first tositumomab infusion (namely, none), I expected I'd be able to get my radioactive dose, head to the Flathead Valley, and dance the entire Nutcracker Suite unimpeded.

Which is rather strange, since I've never danced ballet before.

The first three or four days, I have what I'd describe as fairly mild flu-like symptoms, most notably all-over body aches, nausea, and a general feeling of I-don't-want-to-sit-up-for-more-than-three-minutes-at-a-time.

Between days four and five, the body aches subside, but the slight nausea/queasiness mildly persists. Even today, nine days after my radioactive infusion, I have no desire to eat Reese's Peanut Butter Cups (let alone Junior Mints) or barbecued ribs. Those who know me know there's something wrong when I can't eat peanut butter or pork.

Still, that's really as bad as the recovery gets. And I can't complain. I've met many, many people who have gone through sheer hell as a result of their cancer treatments: tingling hands and feet, numbing exhaustion, short-term memory loss, and more. So peanut butter cups are a small thing to sacrifice.

Also during this time, I think I feel a general tightness in my stomach. I have to admit this may be because I'm looking for any little thing, and so it may be my mind playing tricks, but I do think it's there--and again, even nine days later, that feeling of "tightness" persists a bit.

In retrospect, I think all of these things may be signs of the Bexxar doing its work. After all, radioactive isotopes traveling throughout my body, attaching to cancer cells and detonating, are bound to have some effect. Hence, the body aches and nausea. And because my swollen nodes are concentrated in my abdominal area (the mesenteric and para-aortic node regions, for you med-speak geeks), well, why not have a little tightness in the general abdomen? If the Bexxar's going to work on cancer cells there, having a bit of tightness is probably a good thing, and an indication it's working.

Now, of course, the next Long Wait begins. I've scheduled a blood test for next Wednesday, and an appointment with my local oncologist next Thursday. We'll talk about weekly blood tests for the next several weeks, and when to do the next set of scans to judge the treatment's effect.

But oddly enough, I'm not nearly as cranked up about the scans now as I was last week. Last week, I was worried about when to do them: after a month or so, to get an idea of if the treatment is working? After three months, to get a clearer picture? After six months, to get the most accurate picture? All those were important questions last week--and I suppose they may become more important again as my obsessive/compulsive tendencies kick in--but today, back safe and sound in my own home after radioactive exile, those are things still best left to the long, unknowable future ahead of me.

For now, I'm happy to have the treatment behind me, and a whole new set of "what ifs" ahead of me. Even if one of those "what ifs" is: "What if I can't eat barbecued ribs anymore?"

Prayers sent :)

Hey Tony,

Just a quick note to let you know I’m still on the prayer team.

May God bless you, my friend!

Tony, I've been wondering

Tony, I've been wondering how things were going for you so I was glad to see your new blog. If you don't want peanut butter or barbecued ribs again you'll have new favorites to replace them, the main thing is you're still here to joke about it. Your wife will make sure you get whatever your heart desires and that one thing makes you very fortunate.

Is she still singing the German beer drinking songs even though the staff isn't around to join her or are you doing the background for her? I'm a German but I don't know a word of German so I wouldn't be able to help.

Hope things continue to progess in the right direction and keep the blogs coming.
Barb B

So glad you're home!

I was worried about you being in the wilds by yourself, Tony. What if you got sick from the treatment and couldn't call for help? My imagination was being way too active. If the peanut butter cups aren't tasty now, try M&Ms. LOL

Booster shot from the Flathead

Tony,

I stumbled across your blog and as a fellow traveler I thought I might offer some encouragement.

I was diagnosed with NHL in 2001. Spent the better part of a year sucking down the entire contents of the periodic table while they tried to find something that worked for me. I also spent a lot of time hanging my old bald head over the toilet and feeling sorry for myself.

The good news is that I have had 5+ years now with normal nodes and it's been five of the best years of my life. So, even though it may seem now like the light at the end of the tunnel is from the train that just hit you, keep in mind that things will get better.

We're looking forward to seeing you back up here in the Flathead one of these days. The dance thing is kind of scary, but the third arm should help your balance.

Keep up the positive attitude. The taste for pork will come back. I just hope your weren't talking about the ribs and peanut butter combined, yechhh!

Lucky Sultz
Kalispell

Post new comment

The content of this field is kept private and will not be shown publicly.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Allowed HTML tags: <a> <em> <strong> <cite> <code> <ul> <ol> <li> <dl> <dt> <dd>
  • Lines and paragraphs break automatically.

More information about formatting options