Day 73: Hospital Error in Your Favor. Collect $15.

Submitted by TLHines on Sat, 07/14/2007 - 05:18.

So now, for the last week, I've been getting comfortable with the idea I might have a bit more aggressive kind of lymphoma than what we were thinking. I'm getting comfortable with this fact because I have a high CD19 count (which means a fair amount of lymphoma cells in the bloodstream), somewhat high Standard Uptake Values on my PET scan...oh, and that little matter of a lymph node that may have quadrupled in two months.

But today, with the CT scans on disk from the hospital in Nebraska, I visit my local oncologist here in Billings. We sit down to compare the scans side-by-side.

And find no difference.

No eight-centimeter node. No much of anything, really; the scans look amazingly, boringly similar. And amazingly, boringly similar is good.

"I'm guessing it was a typo or something on the radiologist's report," my oncologist says.

Maybe. I haven't actually seen the radiologist's report from Nebraska, so I can't be sure. But really, who cares? The big news, the wonderful and glorious news is: there's no change. The cancer's not growing at an alarming rate.

That means I have exactly the same amount of cancer I had two months ago. And, as my new friend Andy points out on the Lymphoma.com message board, it's a different world we live in as lymphoma folks. Having the same amount of cancer as your last scan is cause celebré. Like winning the Super Bowl or something. In fact, I catch myself wanting to say, "I'm going to Disneyland."

So there you go. No change in the cancer. That means I have some time to consider my options, and right now, that means I'll be investigating a vaccine clinical trial from Genitope corporation. It appeals to my inner geek.

I'm just thankful that inner geek only has a 2.5cm para-arotic node.

Why do I get the feeling

Why do I get the feeling that your next book might need to be a medical thriller of some sort? You're doing an amazing job of being an informed patient--keep the faith.

"No change in the

"No change in the cancer."

Great news! My stomach flopped when the nurse told you the node had grown, so this, indeed, is great news. :-)

You're in my prayers.

You're in my prayers.

Tony; I just read the

Tony;

I just read the lymphoma files. Never guessed it could be such a compelling read.

I agree with Jamie. I am expecting a medical thriller flowing from your capable hands in the next few years.

Just know you're being prayed for, and that prayer works real, real good.

Bless you, guy. This has been some kind of ordeal for you, I'm sure.

Sam

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